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Should I die, this blog will serve as my son's source of virtual mama.

If I live, I won't have to repeat myself.

sigers writes fiction and nags her son in austin, texas. 

There is no meaningful treatment. No cure. There is one medication, Rilutek, which might make a few months’ difference. It retails for about $14,000 a year. That doesn’t seem worthwhile to me. If I let this run the whole course, with all the human, medical, technological and loving support I will start to need just months from now, it will leave me, in 5 or 8 or 12 or more years, a conscious but motionless, mute, withered, incontinent mummy of my former self. Maintained by feeding and waste tubes, breathing and suctioning machines.



No, thank you. I hate being a drag. I don’t think I’ll stick around for the back half of Lou.“

— Dudley Clendinen has Lou Gehrig’s disease. I want you to read about how he is planning to die with grace.

I want you to assume that people have the best intentions. Sort of.